How can ethnic representation in clinical research studies in childhood and adult SLE be improved?
This question is part of a collaboration with RheumMadness and is specifically in reference to: EMBRACE
Answer from: at Academic Institution
I think there are multiple steps in the research process at which we may have opportunities to improve representation in clinical studies, not just with respect to race or ethnicity, but also socioeconomic and cultural backgrounds. For large database studies like this, there needs to be a major push...
This is the million-dollar question. It will take multifaceted approaches. I think while ironically it should be easier to enroll children with lupus into clinical trials given more pediatric rheumatologists are in academic practices, children are a protected group and as such few clinical trials ar...